Mike Missanelli House, Articles S

Thanks Suki. And recently bv gels just stopped working.). Il principio attivo del saginil serve a calmare la mucosa irritata inibendo una risposta immunitaria eccessiva , in genere con bruciori o calore . It took me 1.5 years of determination and the occasional disappointing set back to cure my vulvodynia. In the end it doesnt matter exactly what cures us, just that we are cured. I cut out potato and the symptoms again eased, coming back whenever I ate potatos relatives, the other Solanacea plants of tomato, chilli, bell peppers or capsicum, and eggplants. Do, I tried everything she suggested and more (low oxalate food, suppliments, saginil gel) and found myself gradually getting better so I continued with everything. I am keeping fingers crossed the gel will help! This made me furious, the fact that doctors don't do any tests on me, that she is offering such a nothing-y thing, and that they just make these assumptions and just dismiss any holistic treatments. Here's the 3 things I've been doing if it helps anyone: Emulsifying ointment (dermol 500), water consumption,and diet (avoiding nightshades). In the end it doesnt matter exactly what cures us, just that we are cured. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515428 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"4285 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1E0IDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emaraM"eilH-en9489242s3nappsnasnappsna d vidvi', 'af_jsencrypt_30619'), Saginil invorrei sapere in quali casi si rivelato un buon prodotto dando buoni risultati, 1 -Mi piace That gave me the hint that my problem might be diet-based. You can place a pad or panty liner underneath it if you have heavy flow. Try our Symptom Checker Got any other symptoms? I see Dr. Michalewski in Lakewood, NJ. Please try again. Amazon assumes no liability for inaccuracies or for missing or outdated information. As the day goes on it burns more and more. She was the one who recommended acupuncture, pelvic floor exercises, physiotherapy, chiropraction and manual desensitisation - all things that she had found to work. These slowly worked for a while and made me comfortable enough to have a long overdue smear test. i had 2 months of pain but pretty much under control at present. Meditation and deep sleep apps help a lot to relax the muscles everywhere. Do you think you could send me the name of the consultant dermatologist you saw, who specialised in vulval pain, in a private message? Dear Suki girl. You are a star..many thanks for all the info. I am better in the morning. i was surprised because, appears from upping the amitriptyline dose to 50-70mg a day (I was on 20), the rest of the things were what you would class alternative, or natural, cures. Makes me extra stressed on top of everything. It will be along journey I see. Ma lo spotting premestruale lo hai sempre avuto? On my 13th day of Estrace and itching and burning so bad in my vagina. I feel super ignorant. We want the forums to be a useful resource for our users but it is important to remember that the forums are My gp knew someone who had had it for 20 years! I had to give up all exercise and walked only when absolutely necessary. Lo hai mai usato internamente? It also reminds me that I had read that vulvodynia can be caused by a reaction to oxalates in food. Read honest and unbiased product reviews from our users. I also only shower and never bath . It seems that as I grew older I could no longer de-toxify any of this family of foods, and by the time I reached menopause the problem had grown chronic. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413945588 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024134-5"5889 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez5Q1gDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emaasi"eb11_l246283psnanapsnapsps na dviidv', 'af_jsencrypt_30623'), Mi piace The first time I tried to post, my message didn't get posted because it had to be moderated (I had put the name of the vitamin e suppository. But I had no other symptoms. I did do yoga exercises that free trapped pelvic nerves. Mine was food related. At first I was afraid to come off it because the consultant dermatologist told me, you may be pain free, but if you come off it too soon, the pain can come back. Continuous unrelenting pain is horrible. There's still quite a bit left in the tube after 5 weeks so it's quite economical really. You are so right. Hi Suki girl. (I used to use flora balancing bv gels almost constantly, acti gel, flora plus and boots brand stuff etc, they used to burn when I'd first put it on, and had other problems with them, but it was okay and that's why I lived with this curse for years, because it was 'okay'. Solanine is the one I'm sensitive to, but they are all to some extent toxic. Dont even know what kind of doctor to go too. Ok, ready for a long story about how I cured my vulvodynia:-. Mi piace Also burns when walking but not as much or lying down. Vulvodynia literally means vulvar pain and is a condition of the nerves in that area. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413655591 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024135-5"5916 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez2U1kTMalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emahot"no103_057ps7nasnappsnasnap vididv', 'af_jsencrypt_30602'). Per saperne di pi sulla gestione dei tuoi dati ed esercitare i tuoi diritti, puoi consultare l'informativa sulla privacy. Disabling it will result in some disabled or missing features. Ma spero che mi fa il risultato. If this was a male illness you bet it would have been cured ages ago. I am currently very confused to try which approach. Very interesting to see how you cured your vulvadynia, and sorry to hear you had such a difficult time. Anyway sorry for the long post and the ranting, I have some good news / suggestions. No wonder I was in utter agony! Saginil gel - you can order it direct from the suppliers, epitech, on their website. I have two recommendations (that I haven't seen in a lot of places) for anyone else who is suffering. Top subscription boxes right to your door, 1996-2023, Amazon.com, Inc. or its affiliates, Learn more how customers reviews work on Amazon. I tried lignocaine and that stung me. Nothing was working and in the end the gynae said that he could not cure me he could just help me managed the pain. But it has a lot of additives and smells of flowers. when I was saying it hurts so I can't have sex with him a lot. It does take a long time - it took me 1.5 years of all that stuff in my message above to get to being pain free. Alos you you need to change your lifestyle. He took a biopsy of the painful area and confirmed no diseases or cancer. As the day goes on it burns more and more. I think they sell them for people with piles. Always speak to your doctor before acting and in cases of emergency seek Stick with the amitriptyline, it will help with pain and sleeping. Please try again. I forgot to write about that - that in the interests of going all out and doing everything I could to cure myself I also went on a low oxalate diet for a couple of years. Infuriating. The gynaecologist gave me lynocaine cream to numb the area, but that stung me and made me worse. There was a problem completing your request. Even now, 5 years later, I still apply coconut oil after every time I go to the toilet, use tonnes of oil based lube during intercourse, go around the house wear no knickers. Basically, the family of plants that make up the Solanaceae have four main alkaloids that are all toxic to a various extent. Mi piace Here are some things I'd like to share in case it helps anyone else out there: I kept saying 'my' vulvodynia because everyone seems to have different issues, I believe mine is a dermatological issue since the creams help so much but these might not help everyone else. Notes on Is it possible I have Pudendal Neuralgia or Vulvodynia, https://patient.info/forums/discuss/is-it-possible-i-have-pudendal-neuralgia-or-vulvodynia-592838. We also use these cookies to understand how customers use our services (for example, by measuring site visits) so we can make improvements. This does not affect your statutory rights. All of these plants are closely related to the Deadly Nightshade, or Belladonna plant. I will try again - it is Key e (I have missed off the name of the manufacturer this time). He had tomato sauce in nearly every meal and his eczema has since cleared completely when he eliminated tomatoes from his diet. Reviewed in the United Kingdom on 31 March 2017. No exercise, no sex, only washing in the intimate area with water (I used coconut oil), no tight clothes - I work mainly from home so I was able to go around all day with no underpants on, just baggy jogging bottoms or a skirt. She got it for me and I took a look. Way to make me worse than I already do, doc! But of course the vagina and vulvar have the most mucous membranes and I got the most pain there. I probably have subconscious thoughts like virginity is the nice honourable thing for a woman and premarital sex is bad. Now, different things work for different people because there are different causes for the vulvodynia: infection, physical or chemical trauma, hormones, trapped nerve in back. Did the toxins come out in your urine and irritate you? I can't say if this helped my vestibulodynia or not, since the burning disappeared overnight the day before this arrived in the post (it has since come back but very mild, for a short period of time, then disappeared again). linda44059. He is a urologist/GYN. I am going to try estrogen cream next when I pluck up the courage to try again! jsdchtml3(' h a=ferh"pttw:swwfla.mmeelinic.smoetulaeb-ssenre1eneb-0fe-iciledbrac-noev-elategp-el-re-alep5v-el63.269mth "l alc ssfa"=es-oslaev-oediltit- "e o cnkcil fi"=fa(AeeSslnEodelba )fa {au_cart_Ektnev_FA\'(eeSoslA,\'C\' \'kcil ,bmE\'VdeLoedini ,\'k,llunaf )esl}; " 01 eb cifen i ledobrac enegevat ell rep allepea', 'af_jsencrypt_30606'), Il tuo browser non pu visualizzare questo video, E' uno dei migliori farmaci della ginecologia!Ciao, io ho usato quello per esterno come sfiammante di una pelle molto irritata visto che non sopporto le terapie di ovuli e lavande , anzi mi peggiorano tutto, l'infezione se ne va ma mi rimane irritazione e con il saginil va via tutto. I am going to try therapy for the first time in my life this week. i will be starting the diet today for sure, talking about medication with the doctor also. It doesn't get better on its own. Upgrade to Patient Pro Medical Professional? Being a dermatologist the first thing she checked was the skin on the rest of my body and my eyes to see if there could be a skin condition or allergy cause. Once the pain had gone I gradually reintroduced high oxalate foodsand I was still ok, so perhaps it was unrelated to diet for me. Well, I was having none of that - I was 47 - I didn't want to have to manage the pain for the rest of my life (and no more sex - no way!). jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413655591 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024135-5"5916 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez2U1kTMalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emahot"no103_057ps7nasnappsnasnap vididv', 'af_jsencrypt_30625'), Copyright 1999-2023jsdchtml3('- a erhth"=fptw:eg.wwsidi.apttith.cnlmat "egrt_"=tponU"otis ed rG lpu opIDEGa - a=ferhh"spttww:a.wmeflimlinmoc.esocpidninoizdtu_izzilid_os_letih.o "lmtattegr_"="potoCzidn inoi idlituzioz- a rh a=femoc"umtuannocecatocttntcapsa.1 "grat=tepot_""tnoCittaa - aerhaj"=favircs:tpCwohspmferPcnerePsepupo)(C"eikoop ciloy - aaerh th"=fsptw:wwla.immefinc.elmootuiaptilod-acip-ietorizeno-ied-add-itllacos-eeia-atmmeflinis-el82145th.44lmnI"rofvitam avirpycaa', 'af_jsencrypt_38033'). Read our editorial policy. I live in the UK, by the way, and have private health cover. Registered in England and Wales. I do like my Dr. - Water: 3 days ago when I spoke with my GP she told me low oxalate diet is unrelated and even if I had high ox I should just drink lots of water. The key is to be persistent, try everything, gradually build things up, stick with what works, be determined, don't give in. Egton Medical Information Systems Limited. Slowly but surely its reducing all the symptoms of vulvodynia. It does have a biological effect of course on our adrenal glands, immune system and everything but I will probably never find out what shape I really am in with my GP being so unhelpful, I have to literally beg to give samples for them to do tests. I really ran out of my respect for doctors and the whole medical industry because of this type of behaviour. Seeing a new doctor tomorrow will have a lot of questions. Neuropathic pain can be very hard to get rid of. you have to walk somewhere just a bit to far to irritate those nerves. https://patient.info/forums/discuss/how-i-cured-my-vulvodynia-613064. I was surprised, after my experiences with gynaecologists, that my consultant dermatologist (who specialised in vulvar pain) recommended acupuncture, manual desensitisation, physiotherapy, chiropractic and psychosexual therapy to me, but I am so pleased she did. The pain is a form of chronic neuropathic pain because it stems from nerve damage as opposed to nociceptive pain which is caused by tissue damage. It's too soon to say if it will cure it but I am hopeful. Coconut oil was soothing (raw, cold pressed, organic coconut oil) so I applied that externally and internally with a clean finger after every time I went to the loo (I carried a little pot in my hand bag so I could apply it while out and about with an organic, pesticide and bleach free cotton pad). i agree most definitley that my hormones are a big factor . She prescribed amitriptylines and told me to try them for 4 weeks. Poi ho letto sul forum e poi sul foglietto illustrativo che per uso topico. google search and it will show pharmacies selling it. Sono andata alla visita con i risultati dei ormoni in mano, sono perfetti. Gradually build up the exercises, doing more and more each time. Then menopause set in and I got hot flushes and my GP told me to stay on the amitriptyline because it helps with hot flushes. What works best is different for different people. not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in Some people find that after a few days it clears the pain completely, some find it doesn't nothing; i was somewhere in between and it reduced the pain just enough so I could bear it. as being in breach of those terms. And good on you for trying everything and finding three that worked for you. Reviewed in the United Kingdom on 10 October 2019, This product is fantastic really helps with problems for woman ya can't get it in Ireland thank God for amazon .it takes about five to six days to kick in so please stick with it amazing for burning horrible sensations that come with flare ups be lost without it, Reviewed in the United Kingdom on 17 July 2020, Reviewed in the United Kingdom on 25 November 2018. Learn more how customers reviews work on Amazon. You can buy it online direct from the manufacturer, epitec. appropriate medical assistance immediately. 29.00. It didnt bother me that I didnt know what was and wasnt working, all that mattered was that I was getting better. This includes using first- and third-party cookies, which store or access standard device information such as a unique identifier. I hope to reduce the dose sometime (gradually, by 5mg very 2 weeks, just like I built it up). i apply vaseline if i swim . All rights reserved. I have ordered the gel you recommend from Italy, and it is now on a well known shopping website in the uk too, and a bit cheaper. less postage. Worst, I lost my trust. My vaginal dryness seems a little better. I also found some medication on the internet, made in Italy which is a gel is specifically for treating vulvodynia. Le perdite marroni ho da poco, sar 4-5 mesi. It can involve the whole of the vulvar area or can be in a horseshoe shape toward the posterior (which may also involve the perineum) or the anterior or can be offset to one side. appropriate medical assistance immediately. a parte questoleggendo il foglio illustrativo ho capito che cmq dovrebbe essere un buon prodotto, un normalizzante, quindi spero che normalizzer la situazione l'avete gi usato? I take probiotics and aloe juice. xeliac test pro, qualcuno l'ha usato? Ill then see how bad Im feeling and buy more if needed. Also burns when walking but not as much or lying down. La dottoressa quindi ha deciso di prescrivermi, l'ultima volta che ci sono andata, questo gel gi inserito negli applicatori. I started forcing myself to drink 5-6 big glasses of water a day. I just wanted to share an update on my experiments. Try our Symptom Checker Got any other symptoms? If you agree, well also use cookies to complement your shopping experience across the Amazon stores as described in our Cookie Notice. To calculate the overall star rating and percentage breakdown by star, we dont use a simple average. So I did some investigating to find someone else who could help me and found a dermatologist consultant in Oxford who specialised in vulva pain. Just thought I should write a review so people are aware to it approach with caution. Also, there will be blips - recovery will be slow and steady if you stick at what works for you, but sometimes something will happen that makes it a bit worse again e.g. and Privacy Policy and steps will be taken to remove posts identified It also analyzed reviews to verify trustworthiness. I don't want it to come back. Western means that they leave the meddles in and pass electricity through them. Devo fare 10 aplicazioni! Don't see the answer that you're looking for? I actually felt pain free enough to have my smear test - big mistake. I think of all the various things that doctors mis-diagnosed me with over the years and am so glad to finally have found out for myself what the problem was, and happily it is one that is easily fixed. Sorry, there was a problem saving your cookie preferences. I have been on the internet driving myself crazy. Customer Reviews, including Product Star Ratings help customers to learn more about the product and decide whether it is the right product for them. I have just started using Dermol 500 lotion. I do occassionally give in an have some hot chips (I'm only human!)