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A bicuspid aortic valve (BAV) is the most common congenital heart defect, occurring in approximately 1%-2% of the general population. I have some issues with a dull pain right below my left breast that seems to come more often with a poor dietbut just doesnt seem like it could me esophagus related? Bicuspid aortic disease occurs when a defect is present in the valve that opens and shuts to allow blood flow from the heart through the aorta. He is football player and he has training 5 times per week (for about 1,5 hours each). Lynn. Negative Stress Echocardiography James Cameron checks in from Pandora with a status report. He loves sports and is wanting to do more and more. A repaired valve may not be as efficient as the native, healthy valve. Aside from the problems with aortic valve stenosis or regurgitation or with enlargement of the aorta, individuals with BAV can also suddenly develop the problem of aortic dissection. No one loves life more than I do, read the statement. Aortic valve repair is sometimes possible. I think hes amazed by what I have described for my workouts of 65+ mile rides several times a week. To save nice heart the best would be doing nothing (! Dr. Larry, thank you very much for your blog! I read most of the posts above and I didnt find people describing the decrease in performance due to the BAV. I dont have any ayptoms. The thing that keeps me sane is that I can jump on a treadmill or go play basketball for a few hours and feel relatively normal. Seek different pediatric cardiologist/hospital (we have not seen a cardiologist yet)? 140 miles at race pace. The surgery involved a replacement heart valve made from a transplanted tissue sourced from his pulmonic valve. So it is very possible to continue athletic activities after surgery. We are wondering is there a science to knowing when he should have the surgery? Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. Hector V. Ive never heard about a mechanical aortic valve becoming loose because of high HR. Im am in stres ?! Now at 74, and after having AVR I am 10 weeks into the dont lift more than 10 pounds restriction. These Famous People Survived Congenital Heart IssuesYou Can, Too, On-Site CLIA Certified Laboratory Services, Click here for COVID-19 & Vaccine Information, Actor, body builder and former California Governor, After winning three Super Bowls with the New England Patriots, linebacker. Every 6 months it is getting larger. Arnold Schwarzenegger Helped Greta Thunberg Get a Tesla, Where to Watch the Biggest 2023 Awards Contenders. They are located between the atria and corresponding ventricle. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Dr. Larry Creswell on athletes and heart health. A bicuspid aortic valve (BAV) is an aortic valve that has only two leaflets instead of three. I exercise, eat well and keep my weight down. He will be rechecked with an echo, BNP blood test & MRI every 6 months. With aortic dissection, the aorta can develop a tear on its inside wall, leading to unraveling of its layers, and even rupture. Seems unlikely to me that there would be lingering effects that would make an EKG or chest x-ray abnormal. Even if its one person I help. This have affected my son psychologically since he loves playing soccer what should I do. Do we have a choice with him only being 15??? The incidence of bicuspid aortic valve and complications. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); these conditions occur mostly during my exercises at the gym and Im left very lightheaded and shortness of breathe. no symptoms yet please help. Again, thank you and bless you for taking the time to talk with us here! Sadly, no crystal ball is available. You can see my post above, from 26th of april. 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My questions are: Weight-lifting is only one example, but others would include golf, bowling, shooting, etc. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. His only complaint or change is shortness of breath with stairs. 2) According to your explanation I rather not do cycling sports, but can I have low intensity sport like cycling or swimming twice a week for 90 minutes each, or 3 times for 60 minutes? She advised us we should start to consider surgery but would follow up with us again in 3 months. Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. Only two cusps, commissures and sinuses are seen in the less common "pure" bicuspid aortic valve subtype. Thanks for the infoI really appreciate what you,have to say. Mild aortic valve disease without symptoms may only require frequent health checkups. The readers here would love to hear back from you as you work through this. Many thanks. Bicuspid valves are quite common (1-2 percent of the population). Is this a normal side effect of the heart condition or not? I lifted weights for many years and spent almost all my life in physically demanding jobs. I had a Medtronic Freestyle valve fitted in May 2002, did exactly as directed regarding exercise etc. And judgment would be needed. Since Im very active in sports, Id like to have your opinion on it. Coarctation of the aorta is a narrowing that may produce an increase in the blood pressure in the upper extremities. Im doing cardio as they said thats fine and I was lifting free weights tonight of 10kg. I have also had a stress test, which showed no issues at all. Im 53. And my wife is screaming at me every time I try to exercise :)). They seem very busy and its taken almost a year to get to this stage. I had a scan done recently and they picked up a what they called a mild dilation of the aortic root at 47mm, ascending aorta 34mm, no other issues. eventually was told everything was ok. Thus far shes had only minor bruising (shes 6ft and has a solid build). Think to report back to let us know how things go for you, personally. Typically, the aortic valve has three cusps (tricuspid aortic valve), but some people are born with an aortic valve that has two cusps (bicuspid aortic valve). About a year ago a pulmonologist discovered a grade 2/6 heart murmur during a workup for a sleep study. I believe that many Cardiologist are not as experienced regarding how to advise high-performing athletes (even older ones like us). They call this type of heart attack the Widow Maker," she wrote. Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. No thrombus, vegetation were noted It sounds like youre off to a good start with your recovery. She's currently spreading the word about the AHA's partnership with CVS' MinuteClinics for free heart health screenings every Thursday in February. Other heart parameters are very good (no bigger chamber or aorta). Bicuspid aortic valve (having only two leaflets rather than the normal three) happens in about 1% to 2% of the population and is more common among men. Thanks. It would be great to know what happens to groups of patients after AVR and aortic replacement that have returned to their various sports. When we go back to re-replace a patients prosthetic valve, for some reason, it usually has to be chiseled out from the heart. New guidelines from the American College of Cardiology (ACC) were published just this week. It functions as a one-way valve, opening and closing with each heartbeat, which keeps the blood flowing in the correct direction. But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. The first pic showed the action and comedy legend in a supine position with a thumbs-up, while the next three featured a lovely autumn walk, taking in the sights. My cardiologist is not concerned. Almost 15 years ago skilled surgeons replaced my aorta valve with a new replacement valve. Many of us are not familiar with the many types and facets of the martial arts. what would your advice be for training & competing? When he was 7 we noticed his heart racing at age 11 his bicuspid aortic valve was diagnosed We have been told his valve is at the top of the normal size chart. Theo Wargo/Getty. Functionally bicuspid aortic valve (type 1). I feel like 95% of other people my doc sees are just happy to get back to their normal life which doesnt include pushing their bodies to extreme limits. After the first month, patients are generally allowed to return gradually to all of their previous activities. Between one and two percent of all people have this defect, and it affects more men than women. Im not looking forward competitions nor marathons. More difficult questions relate to what are acceptable sports/exercise if operation is not (yet) needed. To me, you know your own body and what you can manage whilst straining as little as possible. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? His story is typical. Hi all, And now my aortic root is 42 mm. The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . These operations can sometimes enjoy the benefits of each of the operations you mentioned.and avoid done of the down sides. Apparently this can work better than Losartan? However, my problem is that if I can train at this pace then I can still run but I certainly cant compete! host, 76, suffered a mild heart attack in 2012. Aortic valve regurgitation: Blood leaks back into your left ventricle instead of only flowing into your aorta. My cardiologist gave me green light for everything except strenuous exercise (used to train for ironman and similar challenges). I had a Type A aortic dissection of the ascending aorta that extended into the descending aorta terminating near the femoral arteries. Glad to hear that youve found a surgeon and settled on a plan. Normal biventricular size and function, no scar. Holding breath during lifts valsalva). Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. I have had three annual Echocardigrams, the first two showed mild stenosis, mild LV thickening. Just still unsure however if my bioprosthetic valve affects my cross country running times. Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. Dear Dr. Creswell, Needless to say, the diagnosis was quite overwhelming. Any words you have for us would be greatly appreciated. PS I am really interested to know if HIIT is too intense a system of exercise for people with BAV. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. We live at 6,500 ft (elevation) so Im not sure if its affecting my blood pressure when doing normal things. My son was diagnosed with BAV, by chance, when he was 7. I have almost everyday all day shortness of breath which follows with chest pain and discomfort. Now Id like to know your opinion about physical performance, before and after. In fact, one young man died 5 years after operation (from other non related causes) and the study on his aorta tissue revealed that the device helped it to heal, presenting a healthy histology. I love running. however I have been getting pain (on the left side of my breast) and chest pain due to lack of oxygen. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. I recently also did a 24hr EKG (holter) which was fine. "The 1997 heart valve replacement was never meant to be permanent," stated Daniel Ketchell, a spokesman for Arnold. At the age of 12, she had a procedure to widen her valve as her heart condition continued to have an impact. This makes the aortic valve a tricuspid valve. Since then I completed several 10k races and one half-marathon. 1 year ago I gave up smoking and started endurance running. I am mostly a runner, 4 times a week, with 10 21 km races. To make matters worse, I had a bout of AFIB, about 6 months ago. March 15, 2023. The flaps are called cusps. Ed Helms - Actor - Undisclosed CHD. ( I was much worse though). My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. My son is 15 years old, he was born with BAV /aortic stenosis. Ad Choices, Blood molecules as they exit the left ventricle: I'll be back., The 42 Best Romantic Comedies of All Time, The 25 Best Shows on Netflix to Watch Right Now. What signs should I look out for? Notify me of follow-up comments by email. I have only played a few games of football in the last 5 years due to a knee injury but I have continued running for fun and do 5k in a reasonable 25 minutes. I have wife and two small boys, I wanna live to see my grandchildren. Have completed an excercise stress test and signed off as ok on reaching level 13. 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Theres no reason to not be CPR certified.. How long does it take for the homograft to completely heal? Hey has been physically active with restrictions of no contact sports, and no isometric exercise. I have only trivial aortic regurgitation. My cardiologist (London Heart Hospital) gave me green light to moderate sport activities (no marathon and weight lifting). Athletes with BAV and enlargement of the aorta to greater than 4.5 cm can participate safely only in low intensity sports (eg, golf, bowling, billiards). For athletes with mechanical heart valves, the most important consideration is usually about potential bodily injury while taking blood thinning medications. I have 6 years to go to retirement at the very least. It will also be necessary to keep a close eye on the size of the aorta over time, using echocardiography and CT. The 72-year-old soap oprea legend started feeling a tightness in her chest in Fall 2018, but waved it off until the end of October, when she had to be rushed to the hospital. Very likely an operation will be needed at some point in the future. Yoga is not included in the classification of sports that is commonly used, but I suspect that yoga would have low to moderate static and dynamic components. Specifically, Im wondering about inversions like forearm stand, head stand, and hand stand. Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. BAV is one of the most common congenital heart conditions, occurring in about 2% of individuals. New guidelines from 2015 are in accord with your doctors recommendations about vigorous exercise as well as periodic imaging to measure the aorta. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. Ive recently joined the gym to get fit an toned up but I cant get a clear answer from the cardiologist of what weights I cant actually do at the gym. Just a short info for whomever may read, I searched for Tims name and I found this page: Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. 100 Black-Owned . In 1997, Schwarzenegger underwent heart valve surgery to correct his heart defect. Please refer to this article if not: https://academic.oup.com/ejcts/article/50/3/400/2197426. Business, Economics, and Finance. On said it wont make a real difference, the other said oh yes, that was like a blockage, you will feel the difference. As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. Up until this time shes played volleyball, basketball and has even run track in elementary. Hi, Further to this most recent discussion point I was advised that isometric exercises, such as planks and other pilates type activities, as I understand them, are perfectly safe with BAV. Join Vanity Fair to receive full access to VF.com and the complete online archive now. My heart rate some time is 100. We dont know what to do. I had my BAV replaced in Feb. 2005 (porcine tissue) with a Dacron repair of the ascending aorta. Reply. Palace Insiders Say Prince William Is Already Furious About Prince Harrys Memoir Leaks, Prince Harry alleges Prince William attacked him over Meghan Markle in a new excerpt from, Scene Stealer: The True Lies of Elisabeth Finch, Part 1, Rupert Murdoch Knees Trump in the Balls While Hes Doubled Over Coughing Up Blood, By BG017/Bauer-Griffin/GC Images/Getty Images. But, three heart valve surgeries! I have recently found out that I have aortic regurgitation will soon be needing surgery. But Bob, you confirm that it does for you; and unfortunately I see same for me although 25 years younger. Required fields are marked *. And slow enlargement of the aorta is common for patients with BAV. Schwarzenegger visited USC on April 16, 2007 and saluted the new Cardiovascular Thoracic Institute (CVTI), according to a press release issued by The Keck School Of Medicine at USC. For patients with bioprosthetic valves after heart valve surgery, the valve itself is not usually affected by weight-lifting activities. Therefore, in the current study, we aimed to compare procedural and 30-day outcomes after TAVI between type 0 and type 1 BAV . I now take diltiazem daily. There was only a 0.2 cm increase in the previous 7 years (so from age 21 to 28). Aortic dilatation is a common feature of BAV with a prevalence ranging from 20 to 84% , due to differences in assessment techniques, study population, aortic size thresholds, and heterogeneous nature of the . I am a 28yr old male, and Ive just found out about my BAV. Exercise and sports are usually safe if there is mild aortic root enlargement but no other heart or vascular problems. I was just curious if there any way to know if my valve is affecting my times at all? The actress, 44, found out she had a leaky valve in 2002.